Chronic Illness & Disability
Newly Diagnosed — Getting Organised Checklist
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21 itemsA gentle starting point after a new diagnosis. This free newly diagnosed — getting organised checklist gives you a 21-item head start so nothing important slips through the cracks. it's been shaped by real families using it in real moments — the kind you don't get a second chance to prepare for. Use it as-is, or open it in Checkbloom to customise every item, share it with anyone by link (no account required on their end), and tick things off together in real time from any phone. When you're offline, changes queue and sync the moment you're back. Every Checkbloom template is free to preview and free to download as a PDF. Create a list from this template and share it with anyone by link — they can check items off in real time with no account or app download required.
A diagnosis is a lot to absorb. You do not have to become an expert overnight.
What's on the list
- Write down exact diagnosis and ask how to spell it
- Ask your doctor what happens next
- Ask which symptoms mean you should call right away
- Find one trustworthy source of information
- Note all current medications and doses
- Ask about specialist referral if needed
- Keep contact list of every doctor and specialist
- Set up patient portal access
- Keep running list of questions between visits
- Bring someone to important appointments
- Request copies of test results
- Set up medication schedule and reminders
- Start a simple symptom journal
- Track what makes symptoms better or worse
- Plan for low-energy days in advance
- Keep emergency information somewhere visible
- Understand what insurance covers
- Look into financial or disability support
- Tell employer what you choose to share
- Learn workplace rights
- Connect with community living with same condition
Make it yours in Checkbloom
Free to use. Share with anyone by link — no account needed on their end.
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